ZSOM Data Catalog

Description: The All of Us Research Program is part of an effort to advance individualized health care by enrolling one million or more participants to contribute their health data over many years. The program aims to reflect the diversity of the United States and to include participants from groups that have been underrepresented in health research in the past. The program is developing custom tools and software...
Subject: Big Data

Cohort Studies

Precision Medicine
Access Rights: Free to All

Application Required
Local Expert: Nyasha Chambwe

Authors: Pina Sanelli

Angela Hoang

Bo Yang

Joseph O'Hara

21 more author(s)...
Description: The Acute Stroke Database is a REDCAP database based off of the Get With the Guidelines (GWTG) stroke program. The database contains data on all stroke patients 18+ who came to North Shore University Hospital, which is a comprehensive stroke center (CSC). As a CSC, stroke patients from outside hospitals would transfer in for advanced care in both hemorrhagic and ischemic stroke. The database contains...
Subject: Electronic Health Records

Stroke

Tertiary Care Centers
Access Rights: Application Required
Local Expert: Pina Sanelli

Alternate Title(s): SHOUT
Authors: Pina Sanelli

Bo Yang

Joseph O'Hara

Jean Jimenez

12 more author(s)...
Description: The SHOUT (Stroke Health Outcomes) SQL Database collects all stroke patients who are at least 18 years old from within the Northwell Health system’s electronic medical records, from 2014-2021. It uses their diagnostic codes, and if they had an MRS Score reported, to determine if they had a stroke. The data fields within the database have been made to conform to the NINDS Common Data Elements preferred...
Subject: Electronic Health Records

Stroke
Access Rights: Application Required
Local Expert: Pina Sanelli

Alternate Title(s): RADx Data Hub
Description: The NIH Rapid Acceleration of Diagnostics Data Hub (RADx® Data Hub) supports researchers in accessing curated and de-identified COVID-19 data, allowing them to find, aggregate, and perform data analyses in a cloud-enabled platform. The RADx Data Hub supports efforts to understand COVID-19 and factors associated with disparities in COVID-19 morbidity and mortality in underserved and vulnerable populations....
Subject: Big Data

COVID-19
Access Rights: Free to all with registration

Application Required

Alternate Title(s): ScHARe
Description: ScHARe is a cloud-based social science data platform designed to accelerate research in minority health and health disparities, health care outcomes, and artificial intelligence bias mitigation strategies. The platform offers researchers at all career levels: Access to social determinants of health and other social science datasets. The ability to collaborate as they apply artificial intelligence,...
Subject: Big Data

Social Determinants of Health

Social Sciences
Access Rights: Application Required

Authors: Todd Levy

Kevin Coppa

Jinxuan Cang

Douglas Barnaby

8 more author(s)...
Description: We developed a framework for continuously monitoring and updating prognostic models and apply it to predict 28-day survival in COVID-19 patients. We use demographic, laboratory, and clinical data from electronic health records of 34912 hospitalized COVID-19 patients from March 2020 until May 2022 and compare three modeling methods. Model calibration performance drift is immediately detected with minor...
Subject: Cohort Studies

COVID-19

Retrospective Studies
Access Rights: Free to All

Free to all with registration
Local Expert: Theodoros Zanos

Todd Levy

Authors: Sean Hwang

Ahmad Ballout

Anup Sonti

Amitha Kapyur

9 more author(s)...
Description: Data from a retrospective case series of 192 adult COVID-19 positive inpatients with EEG performed between March and June 2020 at 4 hospitals: 161 undergoing continuous, 24 routine, and 7 reduced-montage EEG. Study indication, epilepsy history, intubation status, administration of sedatives or antiseizure medications, metabolic abnormalities, neuroimaging pathology associated with epileptiform abnormalities,...
Subject: COVID-19

Neurology
Timeframe: 2020
Access Rights: Free to All
Local Expert: Sean Hwang